Interstitial Cystitis Book Directory
If the amount of literature published (in book format) about IC was water we would all be extremely thirsty.
Don’t get me wrong, there are a few stellar books and they deserves recognition, but to date the number of books published on IC sits at about 20, with several of them being highly geared towards the medical community (aka, all those doctors you have stopped speaking to). There is no problem with this, I personally find reading medical texts rather enjoyable, but I know not everyone shares this view, especially, if you are searching for immediate answers and information to very serious medical questions.
So the question arises if there are books for the “layman” and books (more for) doctors, why are so many doctors and heath care professionals still living in the dark ages when it comes to IC knowledge? This question puzzles me, I find that the newer breed of doctors, those who are in their late 20s-early 40s seem to, often, know the most about IC or better yet offer the patient advice, treatment options and help as opposed to oh, I don’t know telling them to take a Valium and see a shrink or completely dismissing their symptoms all together. At the very least Dr. Robert Moldwin’s “The Interstitial Cystitis Survival Guide” should be standard reading early on in med school. It outlines a modern structure of what IC is, treatment options and coping strategies, in concise, simple to understand language.
When it comes to the IC patient I suggest you read as wide a variety of literature on IC as you can, google until your fingers are sore, read until you fall asleep with a book on your chest and then wake up and red a few more chapters. Knowledge my friends, as the age-old adage states, is power. It empowers you by giving you a candid and informative view into this strange and dare I say, horrific medical condition which now affects your body. As with any medical issue you have the right to know as much as you possibly can about what you are inflicted with. Reading about IC will most likely instil in you more confidence as well. When you are sitting in the urologists office and trying to avert your eyes from the detailed plastic replica of the male antinomy, you will find yourself able to actively participate in what the doctor is telling you. You will know that mast cells are not little compartments on ships and that more options than just Elmiron (which does work for many but not all ICers) exist out there.
You will be able to define IC on your own terms and you will have to knowledge base to explain it to others around you. Yes, granted the amount of literature is small, but it is there and I really urge you to take advantage of it. With any luck the number of IC books on the market will change in the near future, but until you can go into any bookstore and pick up a book about IC as easily as you can, say one about the “Atkins Diet” do yourself a great favour and source out IC books by the internet or have them ordered in specially. You deserve to know all that you can.
Here follows a list of all the IC books that are currently in print, that I am aware of (if you know of others please let me know). If anybody would like to write reviews for any of them please contact Jessica Cangiano.
Interstitial Cystitis Book Directory
The Interstitial Cystitis Survival Guide: Your Guide to the Latest Treatment Options and Coping Strategies
by Robert M. Moldwin
Paperback: 236 pages
Publisher: New Harbinger Publications (October 30, 2000)
ISBN: 1572242108
Patient to Patient : Managing Interstitial Cystitis & Overlapping Conditions
by Gaye Grissom Sandler, Andrew B. Sandler
Paperback: 231 pages
Publisher: Bon Ange LLC; 1st ed edition (February 1, 2001)
ISBN: 0970559003
The Official Patient's Sourcebook on Interstitial Cystitis
by James N., Md. Parker, Philip M., Ph.D. Parker
Paperback: 280 pages
Publisher: Icon Health (July 1, 2002)
ISBN: 0597832218
To Wake in Tears: Understanding Interstitial Cystitis
by Catherine M. Simone
Paperback: 225 pages
Publisher: IC Hope Ltd. (November 1, 1998)
ISBN: 0966775007
Awakening Through the Tears: Interstitial Cystitis and the Mind/Body/Spirit Connection
by Catherine M. Simone
Paperback: 191 pages
Publisher: IC Hope Ltd (December 12, 2002)
ISBN: 0966775023
Along the Healing Path : Recovering from Interstitial Cystitis
by Catherine M. Simone
Paperback: 183 pages
Publisher: IC Hope Ltd (September 26, 2000)
ISBN: 0966775015
Solving the Interstitial Cystitis Puzzle: A Guide to Natural Healing
by Amrit K. Willis, Shira Lee, Dawn Mahowald
Paperback
Publisher: Holistic Life Enterprises; 2nd edition (December 1, 2003)
ISBN: 0971086923
A Taste of the Good Life: A Cookbook for an Interstitial Cystitis Diet
by Beverley Laumann
Plastic Comb: 239 pages
Publisher: Freeman Family Trust Publications (July 1, 1998)
ISBN: 096657060X
Confident Choices: Customizing the Interstitial Cystitis Diet
by Julie Beyer RD
Spiral-bound:147 pages
Publisher: NutraConsults, LLC; 1st edition (2005)
ISBN: 097672460X
Interstitial Cystitis (Books)
by Grannum R.Sant
Hardcover: 284 pages
Publisher: Lippincott Williams & Wilkins (September 1, 1997)
ISBN: 0397516959
You Don't Have to Live with Cystitis
by Larrian Gillespie
Paperback: 320 pages
Publisher: Perennial Currents; Revised &Updated edition (December 1, 1996)
ISBN: 0380787792
The Patient's Encyclopaedia of Urinary Tract Infection, Sexual Cystitis and Interstitial Cystitis
by Angela Kilmartin, Geoffrey Chamberlain
Paperback: 200 pages
Publisher: New Century Press (January 12, 2004)
ISBN: 0954267702
Overcoming Bladder Disorders: Compassionate, Authoritative, Medical and Self-Help Solutions for
by Rebecca Chalker, Kristene E. Whitmore, Suzann Gage
Paperback: 352 pages
Publisher: Perennial; Rep edition (May 1, 1991)
ISBN: 0060920831
Cystitis: A Time to Heal with Yoga & Accupressure, An Eight Week Exercise Program with Special Information on Interstitial Cystitis & Urethral Syndrome
by Emmey A. Ripoll, Dawn R. Mahowald
Paperback: 188 pages
Publisher: Authorhouse (February 1, 2003)
ISBN: 1403388709
Interstitial Cystitis (book)
by Philip M. Hanno, David R. Staskin
Hardcover: 218 pages
Publisher: Springer-Verlag (July 1, 1990)
ISBN: 038719598X
Book on Interstitial Cystitis (in Japanese)
Dr Tomohiro Ueda
ISBN 4-87151-311-4
"Understand Cystitis" (in Japanese)
Dr Hikaru Tomoe
ISBN 4-8376-1189-3
The book is available in bookshops in Japan and can be ordered via the website of the publisher Makino Shuppan: www.makino-g.jp
Intersticiální cystitida (an IC book written in Czechoslovakian)
Tomáš Hanuš and Libor Zámecník
Nucleus HK
ISBN 80-86225-30-5
Informative, excellent and interesting books on subjects that go hand in hand with Interstitial Cystitis.
A Headache in the Pelvis: A New Understanding and Treatment for Prostatitis and Chronic Pelvic Pain Syndromes, Second Edition
by David Wise, Rodney Anderson
Paperback: 253 pages
Publisher: National Center for Pelvic Pain Research; 2nd Rev edition (October, 2003)
ISBN: 097277551X
The V Book: A Doctor's Guide to Complete Vulvovaginal Health
by Elizabeth G. Stewart, Paula Spencer
Paperback: 480 pages
Publisher: Bantam (June 25, 2002)
ISBN: 0553381148
The V Zone: A Woman's Guide to Intimate Health Care
by Colette Bouchez
Paperback: 256 pages
Publisher: Fireside (June 14, 2001)
ISBN: 0684870975
The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain and Illness
by Cory Silverburg, Miriam Kaufman, Fran Odette
Paperback: 308 pages
Publisher: Cleis Press (December 1, 2003)
ISBN: 1573441767
Herbs for the Urinary Tract
by Michael Moore (not the film producer Michael Moore)
Paperback: 89 pages
Publisher: McGraw-Hill; 1 edition (January 11, 1999)
ISBN: 0879838159
The Chronic Pain Control Workbook: A Step-By-Step Guide for Coping With and Overcoming Pain (New Harbinger Workbooks)
by Ellen Mohr Catalano, Ph.D. Kimeron N. Hardin
Paperback: 250 pages
Publisher: New Harbinger Publications; 2nd edition (August 1, 1996)
ISBN: 1572240504
Aged textbook photograph by Pontus Edenberg
